Too Hot To Handle – updated

Gallery

This gallery contains 1 photo.


Sometimes when feeding blended meals via g-tube, the food is actually too hot to put in the tummy!  Our mouths are our first line of defense, protecting our bodies from food that is too hot to eat.  But we still … Continue reading

More Unclogging Info

Gallery

This gallery contains 6 photos.


There are those times, when feeding someone via g-tube, that extension tubes and/or the actual button get clogged.  It is a rare day for me, lately, but just last night AND THE NIGHT BEFORE, Nat’s button got clogged. Now while … Continue reading

“ITZBEEN” A BUSY LIFE!


In the world of chronic complex care, like tube-feeding, g-tubes, medications, etc., it can be hard to keep track of all the things we do in caring for another.  My special needs daughter has had multiple meds in her past, and is fed via g-tube four times a day.  Feeding her four times a day involves bolus feeds using a 60 cc syringe 9 times at 3 minutes intervals. I use my kitchen timer for this at home.  When I’m out and about I can use my cellphone or my watch.  There is an easier way to manage multiple timed events.

ITZBEEN, (as in “it’s been” 3 hours), seems like a great tool for keeping track of multiple tasks or events.  While the button labels on this handy item are labeled with graphics for diaper, feeding, and sleeping, there is a blank button for timing additional items.  Of course, you could always put stickers on the buttons to change their meaning. It has a display backlight, and a clip on the back to keep it handy. (I’m thinking clipping it inside a tote bag, purse, etc. would be helpful on the go.) The alarm feature is optional and can be muted.  Some brilliant engineer came up with this because it also has a button lock, preventing accidental reset of the buttons.  It uses 3 AAA batteries.  I’ve contacted the company and am awaiting a reply to see if it has a spot for an AC adapter.

It is listed on Amazon, other online retailers and is available at many upscale baby stores.  Retail price is usually $24.99

The company is sending me one to test and review, so I’ll post an update after I’ve tried it out for a while!

More changes


As the mom of a child with “special needs” (that is such an understatement sometimes, isn’t it?!)  who is fed blended meals via g-tube for medical reasons (except of course that sensory processing disorder is NOT an accepted diagnosis),  change is a constant!  Fortunately, I’m good with change.  I kind of like it.  Otherwise I get bored.

Last week was a trip to “Grammy’s” house in Wisconsin.  With her tiny fridge we don’t have the luxury of taking pre-made blended meals with us. This time we took 2 days worth of frozen blended meals with us and our trusty VitaMix blender.  One of the things I did while there, which has been an exploration all summer, is give her a chance to get really hungry.  This worked rather well, as she actually ate a pizza lunchable twice each day, or hot dogs.  Not the best nutrition or enough calories, but the fact that she was eating twice a day, every day was really fun!  So I only had to feed her blended meals twice a day which was a bit of a break for me.  I haven’t checked her weight yet, but her clothes are fitting just the same.  She has continued to eat more, self-feeding, since we came home.

The other thing I tried was a slightly different egg recipe.  I made 6 hard-boiled eggs, threw them in the blender with some water, a large bunch of spinach and too many almonds. What is too many almonds, you ask?  Well, more than 10.  I was really trying to give her a calorie bump, but I think it was just too “rich” for her.  She felt sick for a couple hours after I fed her.  So perhaps the lesson is too-many-nuts-might-make-you-sick.  Sorta like if I eat too much fiber maybe.

Enjoy the last of summer!

Syringes


As the parent of person fed by g-tube for medical reasons, there are lots of things that make my job easier!  I feed blended meals using a 2 ounce (60cc) syringe.  I do this four times a day.  That means I wash a syringe four times a day.  (I used to have 6 – 8 syringes and feeding tubes in use simultaneously so that I wouldn’t have to wash one right after using it.  This was replaced by a NEW system because I hate washing 8 syringes and tubes at once!  Plus, where to put them?? right? So now I have only 2 – 3 syringes and tubes in play at a time and I just wash them as soon as I’m done, mostly.  That means they last longer and I can just store them on top of the dinner plates in my cabinet.)

Anyway, the thing about syringes is that they have a rubber tip on the end of the plunger. Rubber oxidizes over time. That means it is not as smooth and doesn’t glide (nor fit) as well in the syringe barrel as it does when brand new.  The solution is lubricant.  I use olive oil because I have a handy olive oil bottle with a nice pour spout that allows me to pour only a few drops on the rubber tip of the plunger.  Also, olive oil does not turn rancid quickly so it is safe for me to use in this way.

However, if you want more assurance that you will avoid rancidity, you could use mineral oil.  I hear that it is safe (in small quantities) internally – and will not turn rancid.  If you put it in food though, you are making a mistake.  It is a by-product of petroleum, so not really a food product.  There is food grade mineral oil – which is commonly used for lubricating cutting boards, wooden knife handles, etc.